His journal posts
I have always enjoyed being nicknamed, maybe also as i cannot
remember ever liking my name, or at least being called by my
name... I never did, the feeling it calls forth inside me is ...
jolty, and very reminiscent of the emotional feeling running
through the chest when meeting eye to eye.
Nicknames... i will present a listing under the things i am really
good at, coping that is, dealing with it, surviving... public
judgment
The title however is merely self-made-up one, which i regard
strictly against the rules: as Nina Simone sang, a name is not what
one chooses to call oneself, it is what one is called. The list i
intend to draw up of private things i am willing to own up to shall
contain at least one instance of, well, not making up my own
nickname, but i was responsible (very subtly) for my favourite
nickname getting belated migrationary status upon having moved from
(field)hockeyclub A to BMHC: 'Struik'
- best translated by Shrub - those were the days when my mother
occasionally and not totally beside the mark referred to me as
Louis XIV. And yes, bashfully, i did look a bit like was it Flo
wozzit Eddie in the Zappa outfit...
Which brings me back to a nice bridge by the small pond in my
mother's garden. For i have lost weight. Lots of it. Of late...
ever since... it had set in earlier, but 2007 to me was a good year
only in retrospect.., though WHEN living through most of it, i
discovered all sorts of positive qualities in me, i WAS surviving,
i was actually CAPABLE of survival in dire straits but My way, no
social compromise, and still accepted on the basis of quality of
performance - as a mere construction-clearer - general
house-keeping at one particular construction works.
Different story, elsetime related. That year however is remembered
by me as the year of the frog, with obvious reference (gotto check
some of that) and poetic licence. In reality, there was one, the
smallest ever toadlet to provide a very touching insight into my
gentle nature (gosh, i can amuse myself, noted) at same
construction site, and then there was the little pond in the middle
of the main, south not 10x5 m part of my mother's garden, sort of a
B-sagged-out-of-shape and leaving one wishing the plastic surgeon
had done a better job matching the top-breast (from the window of
my room that is). Total let's say 2X1 m. The garden itself is
filled with bottom growth, but there are tiles around the plastic
rim of the pond, which will host around ten frogs.
2006 had seen the final stages of commercial decline, and I had
nothing. I had been unable to come up not only with regular payment
of rent. In effect, i had no health insurance, as i quit paying the
monthly dues when realizing i wasnt sure i was gonna be able to
come up with it two or three months later. I can assure you, there
is ALWAYS more in these sad cases. It is NEVER just no longer
opening of mail.
If i had then mentally been capable of surprise, it would have
surprised me it had taken them so long to get me evicted. Then
again, it's quite surprising how i managed to survive so long,
too.
Anyway, and this skips some, i had no choice, still managed to
salvage whatever was packageable and solo-mobile - and get it into
boxes and then storage. I miss my books! My pc went awol somewhere
at a dutch-teaching job in Amsterdam SE, which also means i am
gonna have to rework all my industrial safety textbooks if i would
ever get to teach that again... i used my own text books, and sold
them separately from the course income... which could provide some
extra future if i cared to... Of course, the pc held more, but i do
think i managed to salvage most of my creative stuff (my 'notes')
in hard copy - i am indeed from the wrong generation and never got
used to computing at all - still feel so totally out of my
water...
Amsterdam ended due to legal-administrative constraints plus the
small matter of my steeply risen travel expenses. The debtors were
no longer avoidable by march and i got myself into nightshift;
later moved to the construction site. I had my room boxed up and a
bed, and a chair by the eating table in mother's living room, more
or less owning which also sat me at her old, old, Windows ME
laptop. When not working, that's where i sat, when i did not sleep.
I worked hard, very hard, lost well over twenty kg by just physical
work without bothering to break. I worked like a machine, and
learned new things, about myself. And when the weather, when ever
the weather was fine enough, and it was, i just sat quietly by the
small pond, still as possible, and had no doubt, if the indians
would have seen me there, as they regarded Robert Redford dancing,
they would have certainly called me Sits With Frogs.
I hate the french. And yes, i always found Kermit's 'I'm Green'
very apt.
Anyway, again, i moved back into my old teenage room, not leaving
mother very much option (i had few and this was the most logical
one)
I have always enjoyed being nicknamed, maybe also as i cannotremember ever liking my name, or at least being called by myname... I never did, the feeling it calls forth inside me is ...jolty, and very reminiscent of the emotional feeling runningthrough the chest when meeting eye to eye.
Nicknames... i will present a listing under the things i am reallygood at, coping that is, dealing with it, surviving... publicjudgment
The title however is merely self-made-up one, which i regardstrictly against the rules: as Nina Simone sang, a name is not whatone chooses to call oneself, it is what one is called. The list iintend to draw up of private things i am willing to own up to shallcontain at least one instance of, well, not making up my ownnickname, but i was responsible (very subtly) for my favouritenickname getting belated migrationary status upon having moved from(field)hockeyclub A to BMHC: 'Struik'
- best translated by Shrub - those were the days when my motheroccasionally and not totally beside the mark referred to me asLouis XIV. And yes, bashfully, i did look a bit like was it Flowozzit Eddie in the Zappa outfit...
Which brings me back to a nice bridge by the small pond in mymother's garden. For i have lost weight. Lots of it. Of late...ever since... it had set in earlier, but 2007 to me was a good yearonly in retrospect.., though WHEN living through most of it, idiscovered all sorts of positive qualities in me, i WAS surviving,i was actually CAPABLE of survival in dire straits but My way, nosocial compromise, and still accepted on the basis of quality ofperformance - as a mere construction-clearer - generalhouse-keeping at one particular construction works.
Different story, elsetime related. That year however is rememberedby me as the year of the frog, with obvious reference (gotto checksome of that) and poetic licence. In reality, there was one, thesmallest ever toadlet to provide a very touching insight into mygentle nature (gosh, i can amuse myself, noted) at sameconstruction site, and then there was the little pond in the middleof the main, south not 10x5 m part of my mother's garden, sort of aB-sagged-out-of-shape and leaving one wishing the plastic surgeonhad done a better job matching the top-breast (from the window ofmy room that is). Total let's say 2X1 m. The garden itself isfilled with bottom growth, but there are tiles around the plasticrim of the pond, which will host around ten frogs.
2006 had seen the final stages of commercial decline, and I hadnothing. I had been unable to come up not only with regular paymentof rent. In effect, i had no health insurance, as i quit paying themonthly dues when realizing i wasnt sure i was gonna be able tocome up with it two or three months later. I can assure you, thereis ALWAYS more in these sad cases. It is NEVER just no longeropening of mail.
If i had then mentally been capable of surprise, it would havesurprised me it had taken them so long to get me evicted. Thenagain, it's quite surprising how i managed to survive so long,too.
Anyway, and this skips some, i had no choice, still managed tosalvage whatever was packageable and solo-mobile - and get it intoboxes and then storage. I miss my books! My pc went awol somewhereat a dutch-teaching job in Amsterdam SE, which also means i amgonna have to rework all my industrial safety textbooks if i wouldever get to teach that again... i used my own text books, and soldthem separately from the course income... which could provide someextra future if i cared to... Of course, the pc held more, but i dothink i managed to salvage most of my creative stuff (my 'notes')in hard copy - i am indeed from the wrong generation and never gotused to computing at all - still feel so totally out of mywater...
Amsterdam ended due to legal-administrative constraints plus thesmall matter of my steeply risen travel expenses. The debtors wereno longer avoidable by march and i got myself into nightshift;later moved to the construction site. I had my room boxed up and abed, and a chair by the eating table in mother's living room, moreor less owning which also sat me at her old, old, Windows MElaptop. When not working, that's where i sat, when i did not sleep.I worked hard, very hard, lost well over twenty kg by just physicalwork without bothering to break. I worked like a machine, andlearned new things, about myself. And when the weather, when everthe weather was fine enough, and it was, i just sat quietly by thesmall pond, still as possible, and had no doubt, if the indianswould have seen me there, as they regarded Robert Redford dancing,they would have certainly called me Sits With Frogs.
I hate the french. And yes, i always found Kermit's 'I'm Green'very apt.
Anyway, again, i moved back into my old teenage room, not leavingmother very much option (i had few and this was the most logicalone)
AAM-22: Sits With Frogs
about a week ago i attempted to 'honour' whom i had then not yet
dubbed Lucy (and i find one more useful reference to that
particular name, albeit not hers - o luce you will so brite to
me!)
i desired not only to 'honour' her by including her presence where
at least emotionally i felt she had right of mention, i also wanted
to become more truthfully represented right here
AAM-24 NO, i forget my brother... now that i am cheating time, i
might as well do it in a manner to suit me best, albeit
symbolically only. April 24 must be the date and therefore the
number of my late brother.
AAM-23 then, shall be, shall have to be dedicated to honesty - the
subject is one of METHOD to me, and therefore essential - i assume
it will relate best with the keywords Mission, and i intend to test
my honesty by means of the most private thingS i am willing to
state in 'that', my new profile... Ah, Damocles, there thou
art...
Lucy then, i shall define as my significant unsignificant 'other' -
but all three words separately are ambiguous if not worse and on
their own, let alone in whichever of the remaining eleven nine
combinations. She approached me for advice. She got it. We both got
more than we bargained for; given the somewhat complicated and
fragile context - things just Never happen in splendid isolation -
i find myself waiting... well, since over a month now really, for
that one final message ... although she did not know it yet... but
it was visible, it just was, in what she did not allow herself to
address when IM-ing with me. And yes, i have been waiting, for the
ball is still in her court, and it MUST be her decision - but what
can i say, there was none, and then there was, a third party, and
with the advice given - it turned out to be me...
one does think of Roxanna, but more perplexing than that - and even
then, i confess, with appreciation of Nabokov's reflection, simple
age is and always was the guide of my moral and ethical
imperative(s) in this only virtual, never carnal
matter-which-was-never-intended-to-matter...
Anyway, who was it said 'Life is what happens to you when you were
making different plans.'..?
Ladies, please accept: Lucy does not affect my availability on
neither meat nor meet market (am i loving all these - effectively
very in-effective - negatives or whot!), and i was honest all the
while - she never did;
but she will by no means EVER be insignificant to me - intimate
spontaneous thought was shared, individual souls met for a couple
of moments, not even ships crossing courses - whether or not we
will ever meet - we have touched - and she does now hold an
everpresent draw and bias to my compass reading.
about a week ago i attempted to 'honour' whom i had then not yetdubbed Lucy (and i find one more useful reference to thatparticular name, albeit not hers - o luce you will so brite tome!)
i desired not only to 'honour' her by including her presence whereat least emotionally i felt she had right of mention, i also wantedto become more truthfully represented right here
AAM-24 NO, i forget my brother... now that i am cheating time, imight as well do it in a manner to suit me best, albeitsymbolically only. April 24 must be the date and therefore thenumber of my late brother.
AAM-23 then, shall be, shall have to be dedicated to honesty - thesubject is one of METHOD to me, and therefore essential - i assumeit will relate best with the keywords Mission, and i intend to testmy honesty by means of the most private thingS i am willing tostate in 'that', my new profile... Ah, Damocles, there thouart...
Lucy then, i shall define as my significant unsignificant 'other' -but all three words separately are ambiguous if not worse and ontheir own, let alone in whichever of the remaining eleven ninecombinations. She approached me for advice. She got it. We both gotmore than we bargained for; given the somewhat complicated andfragile context - things just Never happen in splendid isolation -i find myself waiting... well, since over a month now really, forthat one final message ... although she did not know it yet... butit was visible, it just was, in what she did not allow herself toaddress when IM-ing with me. And yes, i have been waiting, for theball is still in her court, and it MUST be her decision - but whatcan i say, there was none, and then there was, a third party, andwith the advice given - it turned out to be me...
one does think of Roxanna, but more perplexing than that - and eventhen, i confess, with appreciation of Nabokov's reflection, simpleage is and always was the guide of my moral and ethicalimperative(s) in this only virtual, never carnalmatter-which-was-never-intended-to-matter...
Anyway, who was it said 'Life is what happens to you when you weremaking different plans.'..?
Ladies, please accept: Lucy does not affect my availability onneither meat nor meet market (am i loving all these - effectivelyvery in-effective - negatives or whot!), and i was honest all thewhile - she never did;
but she will by no means EVER be insignificant to me - intimatespontaneous thought was shared, individual souls met for a coupleof moments, not even ships crossing courses - whether or not wewill ever meet - we have touched - and she does now hold aneverpresent draw and bias to my compass reading.
AAM-25: a new profile? - my details & skinny
[[What I’m doing with my life]]
This is the main question of my profile, and i assume it will be my
main question for the rest of my life. It has to be... [[Being
here...]]
(Sellers-reference included, note ALL context implied by ALL
syntactical ambiguIttiness)
... or does it?
So what am i doing here? Simple really, creating a life, my life. I
have a place where i am physically 'live' - i cannot call it my
home, and it is only with some perseverence from any third party
that this is the place i am best addressed
'Een plek om te leven', if i remember correctly, is the title of a
report on the living-accomodation requirements of people with
autism, and then specifically with a view to later life. In terms
of organized assistance, whether or not provided for 'freely' by
'the system', there is little available for the 'auti' or 'aspie'
at the age when independence is normally supposed to (have) set in.
So it's title is certainly apt enough: a place to live.
It is not what i am looking for, i seek more, i seek a place to
become. In that, i am indeed remarkably free - i have been forced
by life to learn and accept that i believe buddhist lesson of
freedom being found in the release of earthly possession. What can
i say, luckily i have never been all that 'materialistic', but i
have found it somewhat tiresome in the end, life without the
long-term security of even an abode.
Real life (RL) holds little for me. That is not some poetic
complaint - it is merely a statement of fact, or rather, inevitable
logical&practical conclusion upon first&thorough
investigation of a number of simple facts. For instance: to make
any money more than i am presently guaranteed, will benefit no one
really, and certainly least of all myself, as a matter of law and
the workings of the social security system.
This situation will not be remedied for at least the next five
years, which means i can START tackling my financial future age 58.
I am not a good prospect, girls, i simply am NOT.
As said in AAM-27, or at least intimated... i will be writing a
work in progress, and it will be bin bit and pieces; to be edited
and addited: time for a break, but i'll post anyway - comments
& questions welcome
[[What I’m doing with my life]]
This is the main question of my profile, and i assume it will be mymain question for the rest of my life. It has to be... [[Beinghere...]]
(Sellers-reference included, note ALL context implied by ALLsyntactical ambiguIttiness)
... or does it?
So what am i doing here? Simple really, creating a life, my life. Ihave a place where i am physically 'live' - i cannot call it myhome, and it is only with some perseverence from any third partythat this is the place i am best addressed
'Een plek om te leven', if i remember correctly, is the title of areport on the living-accomodation requirements of people withautism, and then specifically with a view to later life. In termsof organized assistance, whether or not provided for 'freely' by'the system', there is little available for the 'auti' or 'aspie'at the age when independence is normally supposed to (have) set in.So it's title is certainly apt enough: a place to live.
It is not what i am looking for, i seek more, i seek a place tobecome. In that, i am indeed remarkably free - i have been forcedby life to learn and accept that i believe buddhist lesson offreedom being found in the release of earthly possession. What cani say, luckily i have never been all that 'materialistic', but ihave found it somewhat tiresome in the end, life without thelong-term security of even an abode.
Real life (RL) holds little for me. That is not some poeticcomplaint - it is merely a statement of fact, or rather, inevitablelogical&practical conclusion upon first&thoroughinvestigation of a number of simple facts. For instance: to makeany money more than i am presently guaranteed, will benefit no onereally, and certainly least of all myself, as a matter of law andthe workings of the social security system.
This situation will not be remedied for at least the next fiveyears, which means i can START tackling my financial future age 58.I am not a good prospect, girls, i simply am NOT.
As said in AAM-27, or at least intimated... i will be writing awork in progress, and it will be bin bit and pieces; to be editedand addited: time for a break, but i'll post anyway - comments& questions welcome
AAM-26: a new profile?
53,000 today, the first day of My Annum 53,
there's a lot ffffs in this sixth decade, the more so at -three,
when being one's age with my health coverage leaves one frontal
top-jaw tooth quite squarely bermuda-triangulated offoff&away
-
aptly so, this is the logic of luck that i seek:
it is my birthday today, and I AM fifty-FREE
just posting this to anyone interested, if any at all, be welcome
-
i'll be doing some more posting, preparing a profile overhaul,
taking notes, feel free to join and suggest i am always open for
& to jest - according to my Skype landline number i am from
ManJester - o the lovely co-incidence that litters my life
I have little on offer but sharp conversation, and tender if need
be, and with tender comes sad... -
for although i do gratefully... so gratefully... acknowledge today
that i do, finally, have very much to live FOR, and that i KNOW how
i will be doing it... i owe a great deal of this to one who shall
have to remain ... the
'one, unappeared still, breathlessly awaited' ... the
'one, not yet decided to be' ...
? no more, quoth the raven - Lucy Ne'ermore
well i am gonna have to call her Lucy, for the time being ... and i
am meanwhile waiting for this newfound light in this newly webbed
life of mine... to enter with me in what will be, i all frightful
likelihood... our farewell conversation
so sharp in conversation i can do, but smarting i will do
i have coffee of offer, there is tea, i could hunt the house for
other stuff but to what purpose - amidst the boxes i have been
sorting and repacking - what remain beached from a former life -
one bottle pure pot stilled Redbreast irish whiskey
welcome then, come bearing gifts of token comfort hugging - but
please please do me the honour, the respect, the diginity... of
poking lots of sticky flacky phun at me - BYTE me ;]]]
53,000 today, the first day of My Annum 53,
there's a lot ffffs in this sixth decade, the more so at -three,when being one's age with my health coverage leaves one frontaltop-jaw tooth quite squarely bermuda-triangulated offoff&away-
aptly so, this is the logic of luck that i seek:
it is my birthday today, and I AM fifty-FREE
just posting this to anyone interested, if any at all, be welcome-
i'll be doing some more posting, preparing a profile overhaul,taking notes, feel free to join and suggest i am always open for& to jest - according to my Skype landline number i am fromManJester - o the lovely co-incidence that litters my life
I have little on offer but sharp conversation, and tender if needbe, and with tender comes sad... -
for although i do gratefully... so gratefully... acknowledge todaythat i do, finally, have very much to live FOR, and that i KNOW howi will be doing it... i owe a great deal of this to one who shallhave to remain ... the
'one, unappeared still, breathlessly awaited' ... the
'one, not yet decided to be' ...
? no more, quoth the raven - Lucy Ne'ermore
well i am gonna have to call her Lucy, for the time being ... and iam meanwhile waiting for this newfound light in this newly webbedlife of mine... to enter with me in what will be, i all frightfullikelihood... our farewell conversation
so sharp in conversation i can do, but smarting i will do
i have coffee of offer, there is tea, i could hunt the house forother stuff but to what purpose - amidst the boxes i have beensorting and repacking - what remain beached from a former life -one bottle pure pot stilled Redbreast irish whiskey
welcome then, come bearing gifts of token comfort hugging - butplease please do me the honour, the respect, the diginity... ofpoking lots of sticky flacky phun at me - BYTE me ;]]]
AAM 27 - 16 years left, or 32? will it be 85...
I have not yet decided if i am going to write the in between AAM's,
in fact i have sort of given up on that idea - forced by a couple
of things of more pressing nature.
Once more then, have i succeeded in elevating procrastination from
the the depths of essential 'symptom' or 'occasion of complaint'
straight to the heights of art and philosophy...
'Once', i would have noted about myself that i knew nobody who
could WORK so hard and so long BECAUSE i was lazy - i long for
'having nothing to do'.
It also very much depends on the season. I am extremely sensitive
to change of weather, and season. Come december, in the words of
the immortal Adrian Borland, 'i wish a could sleep, one hundred
days'. I need the warmth of late march, april, to vitalize me until
somewhere in the second half of may things turn summer...
And there it was, suddenly, late easter warm easter, somehow always
is. April is MY month. And yes there it was, and i became active,
and things happened, and again - i had not quite been ready - even
though it is hight time to get going: as said in march: i have no
more time, and no excuses.
I dont need to apologize to anyone but myself: my mission is
self-imposed, partly due to what life has had in store for me so
far -
not only that, but suddenly there is so much more, and i HAVE been
doing so much stuff the needed doing as well, and i have gotten
myself organized, unpacked and repacked almost all the boxes left
from when i got myself evicted a couple of years ago, leaving me in
such a total mess...
i need to get to grips with all that, and i have started doing it -
and i AM finding the form that suits me - i am still restlessly
procrastinating, indeed:
again i have succeeded in posting a post that did not quite come to
the point... or did it?
(now post this and check its formatting)[yessir!]
and now i am talking to myself again, as well...
I have not yet decided if i am going to write the in between AAM's,in fact i have sort of given up on that idea - forced by a coupleof things of more pressing nature.
Once more then, have i succeeded in elevating procrastination fromthe the depths of essential 'symptom' or 'occasion of complaint'straight to the heights of art and philosophy...
'Once', i would have noted about myself that i knew nobody whocould WORK so hard and so long BECAUSE i was lazy - i long for'having nothing to do'.
It also very much depends on the season. I am extremely sensitiveto change of weather, and season. Come december, in the words ofthe immortal Adrian Borland, 'i wish a could sleep, one hundreddays'. I need the warmth of late march, april, to vitalize me untilsomewhere in the second half of may things turn summer...
And there it was, suddenly, late easter warm easter, somehow alwaysis. April is MY month. And yes there it was, and i became active,and things happened, and again - i had not quite been ready - eventhough it is hight time to get going: as said in march: i have nomore time, and no excuses.
I dont need to apologize to anyone but myself: my mission isself-imposed, partly due to what life has had in store for me sofar -
not only that, but suddenly there is so much more, and i HAVE beendoing so much stuff the needed doing as well, and i have gottenmyself organized, unpacked and repacked almost all the boxes leftfrom when i got myself evicted a couple of years ago, leaving me insuch a total mess...
i need to get to grips with all that, and i have started doing it -and i AM finding the form that suits me - i am still restlesslyprocrastinating, indeed:
again i have succeeded in posting a post that did not quite come tothe point... or did it?
(now post this and check its formatting)[yessir!]
and now i am talking to myself again, as well...
AAM 15 -
Have to get into a number of basics anyway. So let's talk autism. I
had deliberately avoided the 'official' literature so as to keep my
mind as open as possible, and more importantly: untainted by
professional prejudice.
i had spent a month in ... paradigm change is the only word ... i
had never felt as if i had ever had found The answer to so many
questions always in my mind to provide at the very least...
understanding for my ... inexplicable ... failure ... at ... all
things ... life
there were sufficient explanations, none of 'm ever clicked
meanwhile... this last.fm thingy is well... gosh... Wont You Tell
Me: Where Have All The Good Times Gone? jeez what have i been
missing... since when have i been missing..?
let's say i quit uni with just the final paper to go, at... 33 -
1989 then maybe a year earlier - no wonder my scores on these
nineties quizzes
i sort of held out independently with positions that held some kind
of promise of ... future? which never materialized, despite always
producing satisfactory results - i guess i am the ideal sub but
never truly part of the team
but that is not a basis to build one's life on, there is a time
when there has to be no more temping, and, without a regular job, i
found myself, in 1994, with my brother Peter, at the Chamber of
Commerce, each registering his very own 'one-man-enterprise' as the
term free-lancer holds no administrative value - so i was a
business man now?
i dont know if i ever did pay normal taxes, nah, did manage once or
twice to break the dontbothertopayVAT limit. Peter's untimely but
long expected death in 2002 was no cause for my caving in
thereafter; it was just that, with Peter, i had now really lost the
only 'witness' of my existence - and i the circumstances of his
final year were, well, not gotten into right now
i lost my place in 2006 - that at least provides a structure of
voids under reconstruction
because i NEED to understand, to make sense of what happened, nor
that i did see THAT LIGHT
EVERYTHING makes SENSE suddenly, it just all too much to even take
in, even over a period; totally surprisingly unexpected details
suddenly appear on the surface in a completely logical fashion...
oh i see, of course
so what did i see... and that is precisely it - how to create a
paradigm change in the mind of the reader, when s/he needs to
redefine almost every single word
- autism is not a disease and is not curable, it is a neurological
CONDITION, the 'traits' of which (if cumbersome) can be dealt with,
by various means
- as a condition, the diagnosis should be made by a neurologist;
there is however no objective 'marker' to positively and uniquely
determine its 'presence'
- as a result, diagnosis can only occur on the basis of (at best
inter-)subjective interpretation of behavioural 'traits'
the DSM-IV(R) provides the most widely recognized criteria for
diagnosis, listed in three groupings of what are suddenly no longer
'traits' but symptoms (as we have now moved to the psychiatrists
office - and as we all know: a shrink 'treats' the mentally
'in/un-sane'):
A. 'impaired' social interaction
B. 'impaired' communication (verbal & non-verbal)
C. 'restricted repetitive and stereotyped' 'patterns' of behaviour,
activities and interests
i need to take a break, but anyone reading meanwhile:
WHAT QUESTIONS AM I ASKING MYSELF when pondering ABC?
Have to get into a number of basics anyway. So let's talk autism. Ihad deliberately avoided the 'official' literature so as to keep mymind as open as possible, and more importantly: untainted byprofessional prejudice.
i had spent a month in ... paradigm change is the only word ... ihad never felt as if i had ever had found The answer to so manyquestions always in my mind to provide at the very least...understanding for my ... inexplicable ... failure ... at ... allthings ... life
there were sufficient explanations, none of 'm ever clicked
meanwhile... this last.fm thingy is well... gosh... Wont You TellMe: Where Have All The Good Times Gone? jeez what have i beenmissing... since when have i been missing..?
let's say i quit uni with just the final paper to go, at... 33 -1989 then maybe a year earlier - no wonder my scores on thesenineties quizzes
i sort of held out independently with positions that held some kindof promise of ... future? which never materialized, despite alwaysproducing satisfactory results - i guess i am the ideal sub butnever truly part of the team
but that is not a basis to build one's life on, there is a timewhen there has to be no more temping, and, without a regular job, ifound myself, in 1994, with my brother Peter, at the Chamber ofCommerce, each registering his very own 'one-man-enterprise' as theterm free-lancer holds no administrative value - so i was abusiness man now?
i dont know if i ever did pay normal taxes, nah, did manage once ortwice to break the dontbothertopayVAT limit. Peter's untimely butlong expected death in 2002 was no cause for my caving inthereafter; it was just that, with Peter, i had now really lost theonly 'witness' of my existence - and i the circumstances of hisfinal year were, well, not gotten into right now
i lost my place in 2006 - that at least provides a structure ofvoids under reconstruction
because i NEED to understand, to make sense of what happened, northat i did see THAT LIGHT
EVERYTHING makes SENSE suddenly, it just all too much to even takein, even over a period; totally surprisingly unexpected detailssuddenly appear on the surface in a completely logical fashion...oh i see, of course
so what did i see... and that is precisely it - how to create aparadigm change in the mind of the reader, when s/he needs toredefine almost every single word
- autism is not a disease and is not curable, it is a neurologicalCONDITION, the 'traits' of which (if cumbersome) can be dealt with,by various means
- as a condition, the diagnosis should be made by a neurologist;there is however no objective 'marker' to positively and uniquelydetermine its 'presence'
- as a result, diagnosis can only occur on the basis of (at bestinter-)subjective interpretation of behavioural 'traits'
the DSM-IV(R) provides the most widely recognized criteria fordiagnosis, listed in three groupings of what are suddenly no longer'traits' but symptoms (as we have now moved to the psychiatristsoffice - and as we all know: a shrink 'treats' the mentally'in/un-sane'):
A. 'impaired' social interaction
B. 'impaired' communication (verbal & non-verbal)
C. 'restricted repetitive and stereotyped' 'patterns' of behaviour,activities and interests
i need to take a break, but anyone reading meanwhile:
WHAT QUESTIONS AM I ASKING MYSELF when pondering ABC?
AAM-03: Point of View; taking perspective
So i decide a week ago, considering why I am still here on OkC and
planning to remain for the while with various good reason, to start
one of the things I am planning to do with the rest of my life.
Which involves writing about autism from a new perspective, and as
fully in public view as possible.
Too soon, I am just not ready, but whenever is one? And yesterday
was international (UN) Autism Day (the one day then to autistically
not to have done one's self-assigned homework) -
which in itself has little to do with the fact that April (since
last year) is also considered Autism Awareness Month. To me... no
excuses. But how to do so when there are so many ways and none of
them to be traveled without map, or a decent set of linguistic
machetes - I am not Graham Greene, this is not Liberia, you are not
my aunt
But something like dating is @ The Heart of The Matter
So why not introduce you to the women in my life. There's not many.
At the moment there is one women specifically NOT in my life (and
this is totally off-topic anyway); there are my two nieces who for
related reasons I don't get to see often enough; there is someone
online but that is quite another situation again, and off-limits in
any number of ways (which leaves a meaningful possible lifetime
virtual friendship that presumably will never be shared in real
life); there is my mother, in whose house I found myself forced to
return upon losing my place in Utrecht was it four years ago...?
And of course there is a small number of women and girls NO MORE in
my life, but remembered, and that's where it gets
interesting.
First though, I feel I might as well introduce you to Emelie. I am
not quite sure of her age, but I guess she would be in her late
forties, or even a touch closer to me. She should be not the One
but The one woman in my life, for the rest of my life. AND, at
least she understands me, or rather 'where I'm coming from' as the
awful phrase has it, and is prepared to follow me on my
thought-experiments with the occasional... moderating remark,
although, and this is the case right from the first observation she
made when we first met early January 6, 2008; if my thought on the
matter are to be taken seriously, I am in the process of
undermining much of what she has been taught about her profession.
I can only be grateful with her openness of mind
I am not sure of a lot of things about Emelie. For one thing, which
is sooooh auti I have come to see, I Do believe in coincidence, or
maybe rather co-incidence. In Dutch, it is translated 'toeval', but
that particular word carries in its wake the medical meaning
'insult' (as in epilepsy, which in not overly unrecent olden days
was also referred to as the 'sacred' affliction. When I first
discovered around 30 I may have what has been called
'non-convulsive' epilepsy (there is an EEG to confirm it), it was
my eager self-mocking irony that immediately decided from
thenonforever I should officially declare to be a Believer in
Sacred Coincidence - hyphen or no. Emelie knows epilepsy by a
daughter so severely afflicted that the co-morbid autism is a
non-issue, albeit the original motivation for career switching into
paediatrics. Apart from her own small private practice and
consulting mainly at kindergarten and primary school level,
suddenly, there is me - who is for another occasion, why i
contacted her has little to do with her.
Emelie, again a very autistic consideration, but there you have it,
these things remain in the fore of the mind when unaddressed ... I
had never heard the name quite like that and immediately verified
its spelling. My mother's name is French Emily but the E is only
ever noticed by the mail she receives; Emma is my favourite name
for a girl. The M is one of my favourite letters, also because of
its three 'legs' in medieval cursory script. And all that still has
little to do with [pronounce;] 'Aymely'. I get upset by
mispronounciations and mis/s/spellings when clearly the result of
lack of respectful attention. One has the inalienable right to go
by one's name. It is simply not on to say [English:] 'Em(m)elie' -
that is someone else; my officially designated social worker is
incapable of ever getting it right - where it truly requires naught
but attentive listening or reading PLUS a bit of unbiased imitation
- which is how every human being starts learning, anything, from
birth of before. Is is too much to ask people for at least being
human?
However, all that is in my mind from the moment I called her with a
relevant question but really not quite intent on avoiding the real
occasion of myself having self-identified as an auti (however
a-typical), and in need of confirmation a.s.a.p. Two weeks later I
had just finished my introductory paragraph(s) and reached out to
take my cup of coffee, when she just asked me: 'How about the
eyes?'
[[expect ADDIT here, next break]]
I should ask more often, but I get a bit full of myself, which she
knows is necessarily part of me, but which - as she does not quite
know as well as she should by now - is mainly due to the nature of
our relationship. I am her job-to-be, and should have been since
last summer, when I was officially deemed entitled to an x-amount
of 'activating guidance' per week. It is my only socio-medical
entitlement as an 'HFA' (high-functioning autist; politically
correct: person with autism).
I am taking a break, the one thing about posting in journal rather
than forum is that it allows for on-going editing...
which is also essential to me as i am a total loss in pc-land, and
am totally inapt if working wysiwyg: my main sensorial problem as
an auti is that i simply CANNOT 'picture' what is not there, not in
my mind I cannot, I MUST be able to SEE
and for the very good reader amongst you..: yes!
you may take this structurally and apply it to my mental state
generally, i am not ashamed to have to admit, for it is my sad
autistic personal reality:
OUT OF SIGHT IS OUT OF MIND (which breaks the heart)
So i decide a week ago, considering why I am still here on OkC andplanning to remain for the while with various good reason, to startone of the things I am planning to do with the rest of my life.Which involves writing about autism from a new perspective, and asfully in public view as possible.
Too soon, I am just not ready, but whenever is one? And yesterdaywas international (UN) Autism Day (the one day then to autisticallynot to have done one's self-assigned homework) -
which in itself has little to do with the fact that April (sincelast year) is also considered Autism Awareness Month. To me... noexcuses. But how to do so when there are so many ways and none ofthem to be traveled without map, or a decent set of linguisticmachetes - I am not Graham Greene, this is not Liberia, you are notmy aunt
But something like dating is @ The Heart of The Matter
So why not introduce you to the women in my life. There's not many.At the moment there is one women specifically NOT in my life (andthis is totally off-topic anyway); there are my two nieces who forrelated reasons I don't get to see often enough; there is someoneonline but that is quite another situation again, and off-limits inany number of ways (which leaves a meaningful possible lifetimevirtual friendship that presumably will never be shared in reallife); there is my mother, in whose house I found myself forced toreturn upon losing my place in Utrecht was it four years ago...?And of course there is a small number of women and girls NO MORE inmy life, but remembered, and that's where it getsinteresting.
First though, I feel I might as well introduce you to Emelie. I amnot quite sure of her age, but I guess she would be in her lateforties, or even a touch closer to me. She should be not the Onebut The one woman in my life, for the rest of my life. AND, atleast she understands me, or rather 'where I'm coming from' as theawful phrase has it, and is prepared to follow me on mythought-experiments with the occasional... moderating remark,although, and this is the case right from the first observation shemade when we first met early January 6, 2008; if my thought on thematter are to be taken seriously, I am in the process ofundermining much of what she has been taught about her profession.I can only be grateful with her openness of mind
I am not sure of a lot of things about Emelie. For one thing, whichis sooooh auti I have come to see, I Do believe in coincidence, ormaybe rather co-incidence. In Dutch, it is translated 'toeval', butthat particular word carries in its wake the medical meaning'insult' (as in epilepsy, which in not overly unrecent olden dayswas also referred to as the 'sacred' affliction. When I firstdiscovered around 30 I may have what has been called'non-convulsive' epilepsy (there is an EEG to confirm it), it wasmy eager self-mocking irony that immediately decided fromthenonforever I should officially declare to be a Believer inSacred Coincidence - hyphen or no. Emelie knows epilepsy by adaughter so severely afflicted that the co-morbid autism is anon-issue, albeit the original motivation for career switching intopaediatrics. Apart from her own small private practice andconsulting mainly at kindergarten and primary school level,suddenly, there is me - who is for another occasion, why icontacted her has little to do with her.
Emelie, again a very autistic consideration, but there you have it,these things remain in the fore of the mind when unaddressed ... Ihad never heard the name quite like that and immediately verifiedits spelling. My mother's name is French Emily but the E is onlyever noticed by the mail she receives; Emma is my favourite namefor a girl. The M is one of my favourite letters, also because ofits three 'legs' in medieval cursory script. And all that still haslittle to do with [pronounce;] 'Aymely'. I get upset bymispronounciations and mis/s/spellings when clearly the result oflack of respectful attention. One has the inalienable right to goby one's name. It is simply not on to say [English:] 'Em(m)elie' -that is someone else; my officially designated social worker isincapable of ever getting it right - where it truly requires naughtbut attentive listening or reading PLUS a bit of unbiased imitation- which is how every human being starts learning, anything, frombirth of before. Is is too much to ask people for at least beinghuman?
However, all that is in my mind from the moment I called her with arelevant question but really not quite intent on avoiding the realoccasion of myself having self-identified as an auti (howevera-typical), and in need of confirmation a.s.a.p. Two weeks later Ihad just finished my introductory paragraph(s) and reached out totake my cup of coffee, when she just asked me: 'How about theeyes?'
[[expect ADDIT here, next break]]
I should ask more often, but I get a bit full of myself, which sheknows is necessarily part of me, but which - as she does not quiteknow as well as she should by now - is mainly due to the nature ofour relationship. I am her job-to-be, and should have been sincelast summer, when I was officially deemed entitled to an x-amountof 'activating guidance' per week. It is my only socio-medicalentitlement as an 'HFA' (high-functioning autist; politicallycorrect: person with autism).
I am taking a break, the one thing about posting in journal ratherthan forum is that it allows for on-going editing...
which is also essential to me as i am a total loss in pc-land, andam totally inapt if working wysiwyg: my main sensorial problem asan auti is that i simply CANNOT 'picture' what is not there, not inmy mind I cannot, I MUST be able to SEE
and for the very good reader amongst you..: yes!
you may take this structurally and apply it to my mental stategenerally, i am not ashamed to have to admit, for it is my sadautistic personal reality:
OUT OF SIGHT IS OUT OF MIND (which breaks the heart)
AAM-02 Yesterday's homework, Change of approach
AAM-01 april: AUTISM AWARENESS MONTH
When procrastination is a disease - anyone up for a TEMP-job?
[re-formatted copy of post in Forum In-life Advice]
A little over a year ago I met Emelie for the first time. We had
only spoken over the telephone, about my recent self-identification
as an 'aspie', which I was now hoping to get confirmed as soon as
possible. When she had heard the basics of my story, of how I had
totally failed, or should I say 'succeeded in not succeeding' in
ALL departments of life, and how I had suddenly ..... 'Executive
Dysfunction' was all she said. And I felt... yes... and I felt...
well, eh... okay?
And an hour later, the moment I closed the door behind me and got
back into the car - yes, I drive, and well, although I haven't been
able to afford any car for the last five years - in the car I felt
... damn.. NO. ED? Me? No bloody way...
She, Emelie, my then found 'autism-consultant', and I, yours
apiciously, we were both right. That is what I aim to show for
maybe the rest of my life. That is also how I got here, and why I
have decided to remain: the testing first, but the social
experiment has become much more important to me.
And then, there is my new 'mission' in life, ever since my
self-identification was confirmed by official diagnosis: I have
Asperger's Syndrome, which is just another name for HFA, High
Functioning Autism.
As far as ED goes, especially in the context of a dating site,
there is NO blue pill to cure this kind of EXECUTIVE DYSFUNCTION.
The is no cure for autism, it is in fact not an illness: it is a
condition, and a fact of life.
At present, there are three 'established' explaining theories on
autism. The 'weak Planning & Executive Function' theory is one
of them. I will spend the rest of my life disproving the Executive
Dysfunction-theory of autism, inasmuch as its validity as an
explanatory model of autism. It's simply not logical, and if I
shall not be able to prove that, I can make a pretty darn
convincing argument for my case.
I would very much like to, BUT I NEED HELP because I do SUFFER from
this Executive Dysfunction - as a 'person with autism' (the
politically correct way of saying it), this ED is the only problem
I have in my daily life.
All the other autistic stuff, no problems and in fact: just as many
things that can be called talent as much as trait.
Executive Dysfunction explains nothing, but it rules my life - all
the same and NEVERtheless. This month, no April joke, is Autism
Awareness Month. In fact, April 2 has been designated UN World
Autism Awareness Day following the adoption of a 2007 Qatari
resolution.
I would very much like to get started on all the things i am doing
here: more testing, some dating (i do beg, ha!), but most of all:
start writing, one piece a day, for Autism Awareness Month.
All I am asking: is there ANYONE out there to help me, and comment,
and ask serious and critical questions, someone to steer me and to
drive me, because these are things my brain does not possess: will
someone be interested enough, to keep me going for just a month
-
a daily little e-mail will do the job (mehopes...)
aspiciously yours, Robert
AAM-01 april: AUTISM AWARENESS MONTH
When procrastination is a disease - anyone up for a TEMP-job?
[re-formatted copy of post in Forum In-life Advice]
A little over a year ago I met Emelie for the first time. We hadonly spoken over the telephone, about my recent self-identificationas an 'aspie', which I was now hoping to get confirmed as soon aspossible. When she had heard the basics of my story, of how I hadtotally failed, or should I say 'succeeded in not succeeding' inALL departments of life, and how I had suddenly ..... 'ExecutiveDysfunction' was all she said. And I felt... yes... and I felt...well, eh... okay?
And an hour later, the moment I closed the door behind me and gotback into the car - yes, I drive, and well, although I haven't beenable to afford any car for the last five years - in the car I felt... damn.. NO. ED? Me? No bloody way...
She, Emelie, my then found 'autism-consultant', and I, yoursapiciously, we were both right. That is what I aim to show formaybe the rest of my life. That is also how I got here, and why Ihave decided to remain: the testing first, but the socialexperiment has become much more important to me.
And then, there is my new 'mission' in life, ever since myself-identification was confirmed by official diagnosis: I haveAsperger's Syndrome, which is just another name for HFA, HighFunctioning Autism.
As far as ED goes, especially in the context of a dating site,there is NO blue pill to cure this kind of EXECUTIVE DYSFUNCTION.The is no cure for autism, it is in fact not an illness: it is acondition, and a fact of life.
At present, there are three 'established' explaining theories onautism. The 'weak Planning & Executive Function' theory is oneof them. I will spend the rest of my life disproving the ExecutiveDysfunction-theory of autism, inasmuch as its validity as anexplanatory model of autism. It's simply not logical, and if Ishall not be able to prove that, I can make a pretty darnconvincing argument for my case.
I would very much like to, BUT I NEED HELP because I do SUFFER fromthis Executive Dysfunction - as a 'person with autism' (thepolitically correct way of saying it), this ED is the only problemI have in my daily life.
All the other autistic stuff, no problems and in fact: just as manythings that can be called talent as much as trait.
Executive Dysfunction explains nothing, but it rules my life - allthe same and NEVERtheless. This month, no April joke, is AutismAwareness Month. In fact, April 2 has been designated UN WorldAutism Awareness Day following the adoption of a 2007 Qatariresolution.
I would very much like to get started on all the things i am doinghere: more testing, some dating (i do beg, ha!), but most of all:start writing, one piece a day, for Autism Awareness Month.
All I am asking: is there ANYONE out there to help me, and comment,and ask serious and critical questions, someone to steer me and todrive me, because these are things my brain does not possess: willsomeone be interested enough, to keep me going for just a month-
a daily little e-mail will do the job (mehopes...)
aspiciously yours, Robert
AAM-01 When procrastination is a disease (HELP?)
nothing better to do maybe than experiment a bit & have a look
around... for Treasures
- over the years, one would have expected, OkC might have hung on
to much more that did not quite make it to the public annals
-
anyway, i could not care less, nor see the 'humour' of the Stinky
Feet, but the Fat Project was a very nice read, and reminded me of
one of the best films i ever saw (quite moving actually, in all
departments *he pictures*): La Grande Bouffe
anyway; for experiment sake:
- will i get someone suggesting me a director?
- will the OkC staff be so forthcoming as to provide me and other
future readers with let's say a bi-annual update on how they are
doing..?
i do hope Nicole managed to lose some, but certainly not all the
weight gained; i think the pictures made me realize i may not even
really like skinny - seeing how she turned really attractive at
some point -
i might have to rethink a number of questions...
again...
nothing better to do maybe than experiment a bit & have a lookaround... for Treasures
- over the years, one would have expected, OkC might have hung onto much more that did not quite make it to the public annals-
anyway, i could not care less, nor see the 'humour' of the StinkyFeet, but the Fat Project was a very nice read, and reminded me ofone of the best films i ever saw (quite moving actually, in alldepartments *he pictures*): La Grande Bouffe
anyway; for experiment sake:
- will i get someone suggesting me a director?
- will the OkC staff be so forthcoming as to provide me and otherfuture readers with let's say a bi-annual update on how they aredoing..?
i do hope Nicole managed to lose some, but certainly not all theweight gained; i think the pictures made me realize i may not evenreally like skinny - seeing how she turned really attractive atsome point -
i might have to rethink a number of questions...
again...
La Grande Bouffe: how about Nicole & Eric?
INTRO i guess my first post wont have to be some winge, pomming
over why i skip so many questions: in need for my openness meeting
your correct understanding in my light
.
many of my answers cannot be understood without specific context
added - due to simply another way of thought:
i guess i shall soon have to accept the WTF-award, o well...
.
autism (ASD, AS) is very much about language and perceiving the
world by means of an underdeveloped system of 'self'
.
SIDELINE on a site like this methought this & its perspective
on love&loving best tackled straight from the top, in my
profile, but then, whyever not.., in this my first post:
by way of thanks for all of these wonderful tests
.
INTERMEZZO i prefer 'aspie' for term of endearment, but feel
obligated to have stated once it is the same:
an aspie is an auti (although not every auti is an aspie)
.
us aspies then, have a problem with the imagination, which will be
different than usual, and i believe more passive, less actively
creating-out-of-the-blue - more re-creating, patterning,
eclectically shaping what some other hath before created
.
GET.TO.THE.POINT.robert:
please therefore, sexy ladies who desire to be roleplayed, pass me
by, or help: i shall sincerely attempt to dance but it shall never
come naturally, and thou shalt have to lead - or
[voice Elvis Costello:] there will be noooo dancing
if us aspies are silent: ask us please, directly, straight, we
might not even be capable of spontaneously thinking of asking at
all, let alone one particular question at that
(o, was i expected to tell her i love more than once in a lifetime?
gosh, who would have thought...)
.
so these tests are a taste of paradise to me THANKS
.
ON TOPIC, PLEASE aspies & love
The 'How Do You Love' Test, Questions 20, 21, 22 > Yes/No
20. 'Love is a canvas furnished by Nature, and embroidered by
imagination.' 21. 'Love doesn't grow [from] trees like apples in
Eden - it's something you have to make. And you must use your
imagination too.'
-Q20-YES i agree, but no canvas to embroider my art onto
-Q21-YES i agree, but what with no trees on barren plains
.
what if the functionality of loving has not been enabled
due to an underdeveloped sense of self: [voice: Dear Henry:]
there's a w/hole in the bucket, dear Lisa, dear Lisa...
LESSON: Q22. 'Of all forms of caution, caution in love is the most
fatal.'
YES YES YES
[voice Elvis Costello:] Allison, my aim is true
INTRO i guess my first post wont have to be some winge, pommingover why i skip so many questions: in need for my openness meetingyour correct understanding in my light
.
many of my answers cannot be understood without specific contextadded - due to simply another way of thought:
i guess i shall soon have to accept the WTF-award, o well...
.
autism (ASD, AS) is very much about language and perceiving theworld by means of an underdeveloped system of 'self'
.
SIDELINE on a site like this methought this & its perspectiveon love&loving best tackled straight from the top, in myprofile, but then, whyever not.., in this my first post:
by way of thanks for all of these wonderful tests
.
INTERMEZZO i prefer 'aspie' for term of endearment, but feelobligated to have stated once it is the same:
an aspie is an auti (although not every auti is an aspie)
.
us aspies then, have a problem with the imagination, which will bedifferent than usual, and i believe more passive, less activelycreating-out-of-the-blue - more re-creating, patterning,eclectically shaping what some other hath before created
.
GET.TO.THE.POINT.robert:
please therefore, sexy ladies who desire to be roleplayed, pass meby, or help: i shall sincerely attempt to dance but it shall nevercome naturally, and thou shalt have to lead - or
[voice Elvis Costello:] there will be noooo dancing
if us aspies are silent: ask us please, directly, straight, wemight not even be capable of spontaneously thinking of asking atall, let alone one particular question at that
(o, was i expected to tell her i love more than once in a lifetime?gosh, who would have thought...)
.
so these tests are a taste of paradise to me THANKS
.
ON TOPIC, PLEASE aspies & love
The 'How Do You Love' Test, Questions 20, 21, 22 > Yes/No
20. 'Love is a canvas furnished by Nature, and embroidered byimagination.' 21. 'Love doesn't grow [from] trees like apples inEden - it's something you have to make. And you must use yourimagination too.'
-Q20-YES i agree, but no canvas to embroider my art onto
-Q21-YES i agree, but what with no trees on barren plains
.
what if the functionality of loving has not been enabled
due to an underdeveloped sense of self: [voice: Dear Henry:]
there's a w/hole in the bucket, dear Lisa, dear Lisa...
LESSON: Q22. 'Of all forms of caution, caution in love is the mostfatal.'
YES YES YES
[voice Elvis Costello:] Allison, my aim is true
Autism/Asperger's & Love