Q: Why do you walk different?

A: Because i have Duchenne Muscular Dystrophy. I was born with it, but we didn't know about it till I was eight.

It is making my back curve, it also makes my stomach stick out ,so that is why I walk so different.  

It is one of the worst forms of Muscular Dystrophy. 

Its is mostly found in boys, I am one of the very few girls that have this disease.  

Most of the boys are permanently in wheelchairs by the age of 13, and most don't live past 25 because their lung and heart muscles get too weak to function. 

But since i am a girl, it is affecting me different because i am still walking and my muscles are still pretty strong, the doctor's don't really know how it is going to affect me.


Q: Will it get worse?

A: My disease is progressive, meaning it is getting worse and will continue to as I get older.


Q: Why do you use a wheelchair sometimes but not all the time?

A: To be honest I don't like to use my wheelchair, who would? 

But when it comes to reality sometimes I HAVE to use it. Mostly for long distances like parks, hospitals and sometimes the mall. 

And sometimes I just get tired and I want to use it so I don't fall, because when I fall, I can't get up off the ground, someone has to pick me up.

Q: Why does someone have to help you get out of chairs? 

A: Because my legs are not strong enough for me to get up on my own, I mostly need help getting off of couches, movie theater seats and cars that are low.

Q: Why can't the doctors fix you?

A: Because right now there is nothing they can do, there is no magic shot or pill i can get that will fix this. They are doing research for a cure and hopefully in my lifetime they will find one.

Q: Does it affect your brain?

A: No it does not affect me mentally at all, just because you see someone in a wheelchair does not mean that they are mentally handicapped.


I wrote this blog because I want people to know more about my disease, so they wont look at me so differently, because really I am just like you just weaker. I really just need friends more than anything right now and I'm tired of boys looking at me like I'm an alien, just because I'm not like all the other girls, doesn't mean I don't want a boyfriend. I just want more people to understand what life is like for me. If you have ANY questions don't hesitate to ask me I would love to answer them. I try not to let this disease get me down sometimes it's really hard but I have learned to live with it and try my best, because i don't give up, I could just sit in the wheelchair and let everyone do everything for me, but I am a fighter and I will do whatever I can to stay walking and for the most part independent